Privacy Policy


The Minderoo Foundation is a not-for-profit initiative that oversees the website. This policy explains how we use, disclose and protect the personal information of people who use our website or otherwise join or support the Universal Cancer Databank in the ways described below. The Minderoo Foundation values and respects the privacy of our members.

What information do we collect?

In order to use the Universal Cancer Databank site, we may require information from you in order to provide the best service possible. All correspondence, including by email, may also be collected and stored, particularly in regard to donations.

How do we use your personal information?

The Minderoo Foundation collects, holds, uses and discloses personal information where necessary for its operation, including staying in contact with you and letting you know of opportunities to take part in supporting the roll out of the Universal Cancer Databank, as well as for any secondary purpose that is reasonably related to this primary purpose. The Minderoo Foundation may also hold, use or disclose your personal information where you have expressly or implicitly consented to the holding, use or disclosure, or where the holding, use or disclosure is authorised or required by law. If the Minderoo Foundation wishes to hold, use or disclose your personal information in other circumstances, we will obtain your prior consent to do so. Further information about this is provided in the remainder of this policy.

When might we give anyone else access to your personal information?

The Minderoo Foundation will not disclose your personal information to any third parties except:

  • to our related companies, but only in exceptional circumstances;
  • to third parties appointed by the Minderoo Foundation, including our contractors, website and data hosting providers, email or SMS providers, technology service providers, advertising partners, campaign partners and other persons who perform services for us – in which case, the Minderoo Foundation uses reasonable steps to ensure such third parties keep your personal information confidential and do not use or disclose your personal information for any purpose other than the purpose of providing those services to us;
  • to our professional advisers, accountants, insurers, lawyers and auditors on a confidential basis;
  • if the Minderoo Foundation or its assets are or may be acquired by a third party, the information may be provided to that third party and its advisors;
  • in exceptional circumstances, the Minderoo Foundation may be required or permitted by law to disclose personal information, for example when it is necessary for something you have requested from us and when necessary to protect someone's safety, rights or property; or otherwise with your consent.

We do not hand our membership lists over to other groups. From time to time we might let you know about an exciting or important campaign being run by a partner organisation to support the roll out of the Universal Cancer Databank. When we do this, the Minderoo Foundation will let you know, and will not hand over member information without consent and without securing a suitable written agreement with the other organisation for the proper use of this information.

The Minderoo Foundation may disclose your personal information to third parties located outside of the country in which your personal information is collected, if it is reasonably necessary for the Minderoo Foundation. The Minderoo Foundation will take reasonable steps to ensure that any foreign recipient protects your personal information in the manner provided in this policy. By providing the Minderoo Foundation with personal information, you consent to us disclosing personal information to a foreign recipient.

How can you stop receiving email from the Minderoo Foundation?

If at any time you would like to unsubscribe from our email list, you may do so by clicking on the unsubscribe link included in each of our emails or by emailing with "unsubscribe" in the subject heading and we will remove your name from our lists. We will act quickly to implement such requests but please note there may be time lags of up to a month to remove names from our database.

Financial transactions

If you make a financial transaction with the Minderoo Foundation, your credit card or other payment information will be used only for this transaction through our secure online payment system. The Minderoo Foundation does not retain payment information without your consent.

How does the Minderoo Foundation keep your information secure?

The Minderoo Foundation endeavours to take all reasonable steps to keep secure any information that we hold about you, and to keep this information accurate and up to date. Your information is transmitted internationally to be stored on secure servers that are protected in controlled facilities. We require our employees and data processors to respect the confidentiality of any personal information.

What technologies do we use to analyse traffic on the Universal Cancer Databank website?

Like most websites, we collect basic web traffic information (such as IP addresses) to monitor overall usage of our site. This helps us understand traffic patterns and know if there are problems on the site. Cookie technology is used on several parts of our website. Cookies are pieces of information that a website transfers to a computer, tablet or smartphone to analyse website usage and to facilitate transactions and a more personalised website experience. Most web browsers are set to accept cookies. If you do not wish to receive any cookies you may set your browser to refuse cookies. This may mean you will not be able to take full advantage of all the functions on the Universal Cancer Databank website.

Children's privacy

We do not intend to solicit personally identifying information from children. Visitors who are under 13 years of age should ask their parent or guardian for guidance before they enter any personal information on our website.

Gaining access to your information

If at any time you want to know exactly what personal information the Minderoo Foundation holds about you, you are welcome to request access to your record by e-mailing us at As a standard procedure to protect anybody else gaining access to your personal information, we will ask for some proof of your identity before disclosing this information to you.

Links to other websites

The Universal Cancer Databank website contains links to other websites. The Minderoo Foundation is not responsible for the practices or privacy policies of those sites, unless overseen by us.

Future revisions

The Universal Cancer Databank website and activities will continue to grow and change. Because of this, from time to time, our privacy policy will be reviewed and revised. Whenever we change our privacy policy we will post an updated version on our website, including the last date of revision. This privacy policy implemented on 20th April 2018.

Contacting us

If you have any questions about how we handle your personal information and protect your privacy, please feel free to contact us at